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Story 153

Brightly colored butterfly, colors changing from left to right of yellow, green, blue, purple and pink. Paper texture art, with layers of shadows.
© Illustration by Life in Lyme Light, utilizing Adobe Firefly AI.

How has Lyme disease affected your life? What inspires you?

I was diagnosed 3 and a 1/2 years ago, and although I was on antibiotics for almost 3 months, everything got worse. My entire life has changed drastically before me and no one can seem to help me. Doctors look at me like I’m making my symptoms up, I can’t keep a job because I’m always in pain, my entire body aches all day, the memory fog is getting worse; I’m forgetful. I mess up drastically when writing. I barely sleep, I’m frustrated all the time, I have tremors in my hands, I can’t be in the sun like I used to. I CAN’T DO ANYTHING ANYMORE!!! There’s days I can’t even move. But no one can help me. I don’t know what normal feels like anymore. My family tries to help, but it’s getting worse, and I’m getting more and more angry at myself because I don’t want to accept that this is what I will be for the rest of my life. I’m tired of my daughter seeing me in pain. I’m frustrated that my family has to watch me go through this and there’s nothing they can do! I just wish I can feel what being NORMAL feels like again!!!

“I might have Chronic Lyme Disease, but IT will never have ME.”

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