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Story 6

© Illustration by Life in Lyme Light.

How has Lyme Disease affected your life?

I was diagnosed with MS 15 years ago. Two years ago I was told there was nothing else I could take to stop the progression of the disease. Through Facebook I learned about chronic Lyme disease and how MS can possibly be a misdiagnosis of it. I sent my blood away to a lab in the states since the Canadian Elisa test is faulty and inaccurate. My results came back with a positive for chronic lyme also active lyme and at least two co-infections. I began treatment with a lyme literate ND in my city since no doctors are allowed to treat chronic lyme because “it doesn’t exist” . A few months later I also started to be treated by a Lyme literate MD in the states. Its been about 1 1/2 yrs of treatment now. My mobility is still a big issue but my fatigue, energy, cognitive issues have all improved. I had suffered for 15 yrs with the wrong treatment it will take a few years with the correct one. All appointments both ND and MD are paid out of pocket, all supplements, homeopathy, and prescriptions are all out of pocket. We also cover travel cost, food, and hotel when I must go see my American MD. My heart just aches when I think of the total we have spent on this. I have no other options. This is my last hope to walk again.

What inspires you?

My husband and my two wonderful sons. I use to be  very active volunteering with my community. I look forward to doing so again. I want to be an involved grandparent someday. I go to bed every night saying thank you for the past day and I wake the next morning thankful for being able to greet the day..

“Never give in and never give up!” – Hubert H. Humphrey

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