*I’ve come to learn no one knows what to do and you need a lot of money to try anything and everything to get better. *I’ve learned getting the diagnosis of Lyme is not a relief as once thought (“now I know what my problem is”) *I’ve learned the diagnosis is a pain in the ass and gets little attention from the medical community. *I’ve learned that everyone I tell knows someone with Lyme. *I’ve learned it takes all the little energy I have to convince doctors “my treatment is not working and I’m still really sick”. *I’ve learned not to act OK anymore, but to be honest or doctors “assume” I’m OK…(like don’t wear lipstick or makeup to your appointments 🙂 ) *I’ve learned you can only fake it for so long. *I’ve learned I can’t do this alone. *I’ve learned I need to take a leave of absence from my job to make my one and only job to get better. *I’ve learned that’s probably going to require going to a different county to do so. (Doing the research now to figure out where that will be. Has to be body, mind, and spiritual healing to heal, that is for certain.) *I’ve learned Lyme sucks and don’t ever get bitten!
How has Lyme Disease affected your life? What inspires you?