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Story 109

© Illustration by Life in Lyme Light.

How has Lyme Disease affected your life? What inspires you?

Over 3 years, and over 15 doctors to come up with the diagnosis.

I was told it was all in my head. Told I was crazy. Told I was a pill seeker for Xanax and other benzodiazepines.

I had to take medications while I was pregnant that jeopardized my pregnancy—because again—I was told it was all in my head.

Neurologist, endocrinologist, spinal therapists, general practitioners, cardiovascular surgeons, nurse practitioners, orthopedic doctors, chiropractors, physical therapists- no diagnosis.

Finally in February of this year, I went to my general practitioner’s office and said enough is enough. Nothing is working, I’ve been on every anti-anxiety medication that could possibly be prescribed—and I’ve had no results.

I made it so known that if they didn’t want to run anymore tests, that I wanted it documented in my charts, and that I would go elsewhere. That is when they took me seriously.

IGG and IGM positive. Spread to my brain. Currently I have a picc line in my arm after 30 days of oral antibiotics and antivirals.

I never thought this could be me. Never in all the years did I think it could be Lyme. I’m so happy to finally have an answer, but so scared because of how divided the medical community is on this issue.

One day, I hope we live in a world where we know that this disease can be transmitted from mother to fetus, from spouse to spouse. Lyme claims over 400,000 lives a year, but yet we are so focused on a “flu-like,” virus that has virtually shut our country down. Bring awareness, bring hope, and keep fighting warriors!!!

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